Jon Pritchard died last week after a long illness. Although we had feared this news for while its still sad and unsettling to hear it, he will be impossible to replace in many ways, not least as the most skilled and experienced clinician we knew and also the most enthusiastic supporter of the HRTrust.
On top of that we have received more stories from parents who have lost children to Histiocytosis of one sort or another including Daniel Connacher and Andrew Jones. It is ironic that now we have our new site (built on Liferay) up and running at a redirected http://www.hrtrust.org and yet the first new stories have been tragedies of one sort or another.
On the positive side, Jon's legacy is alive and well with meetings planned in UK and of course the website is finally live (more postings later about that). Things, as they say, can only get better...
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